UPDATE: 2024 FOD/OAA Family Forum June 28 – 29, 2024 in Pittsburgh!
2024 FOD/OAA Family Forum ~ June 28-29, 2024 UPDATE July 7, 2024: THANK YOU to all our Volunteers (especially Gwen Abele , Brenda...
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Deb Lee Gould
Jul 24, 20231 min
Crazier Things Have Happened: Stacy Webber's new book supports our FOD Group
Stacey Webber's new book, Crazier Things Have Happened, is her journey to motherhood through the world of infertility and other life...
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Deb Lee Gould
Jun 4, 20234 min
UPDATE: Our FOD Family MeetUp was June 24, 2023 in Bethesda, MD!
THANK you to ALL of our generous Sponsors for our 2023 FOD MeetUp! They include Leadiant Biosciences, Reneo Pharmaceuticals, Berman &...
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Deb Lee Gould
Apr 19, 20201 min
New Welcome Kit
Check out our new FOD Welcome Kit! Great info for our new Family members as well as any member who has been here for a while.
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Deb Lee Gould
Jan 28, 20202 min
2020 FOD Regional MeetUp ~ Oct 24th in Hartford, CT ~ Virtual and Interactive!
OCT 24, 2020 in Hartford, CT ~ the FOD Group will hold our 1st FOD Group Regional MeetUp for our Families in conjunction with Rare New...
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Deb Lee Gould
Jan 29, 20191 min
Partnership with Rare Patient Voice
We have created a partnership with Rare Patient Voice, LLC, that offers our Family members a chance to have their voices heard via...
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Deb Lee Gould
Jan 29, 20191 min
Volunteers Needed
Volunteers Needed:Â Newsletter Formatting, Family Fundraisers, Regional FOD Meet-Ups, Grant Writing ~Â Contact Deb
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Deb Lee Gould
Jan 29, 20192 min
FOD Study Recruitment Update
UPDATE! FOD Study Recruitment: Patients & Families needed for BOTH Studies - refer to below and our past Newsletters. 2023 MCAD...
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Deb Lee Gould
Jan 29, 20191 min
Genetic Mistakes: Understanding and Living with Fatty Acid Oxidation Disorders
One of our FOD family members, Rosemary Forrest, has co-written an exciting new book, Genetic Mistakes: Understanding and Living with...
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Deb Lee Gould
Jan 29, 20191 min
Donations are Tax-Deductible
Donations are tax-deductible – we also now accept stock donations! Make a donation or contact Deb for stock donation info.
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Deb Lee Gould
Jan 29, 20191 min
Professionals Needed
Professionals ~ Please share your Expertise and your Research/Clinical work on our website! Professional articles or summaries on your...
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Deb Lee Gould
Jan 29, 20191 min
Physician Support Services
NEW Services! Physician Support Services ~ "metabolic diagnosis and management through the use of simple & secure technology. Scheduled...
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Deb Lee Gould
Jan 29, 20191 min
Awareness Items
Visit our Awareness Items page to purchase FOD bracelets, FOD ribbon car magnets/stickers/window clings, tshirts, Lapel Pin and more ~...
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Deb Lee Gould
Jan 29, 20191 min
Learn About FODs with Videos
Learn about FODs and how our Group began via our Videos. If you have an FOD Story in video format and would like me to post on our FOD...
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Deb Lee Gould
Jan 29, 20191 min
Pro Bono Grief Support
Deb offers pro bono Grief Support for Bereaved Parents & other adults living with loss in person (Okemos, MI) or online via zoom...
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Deb Lee Gould
Jan 29, 20191 min
Article Honors Dr. Roe
Excellent article honoring Dr Charles R Roe, one of our FOD research/clinical experts (retired from clinical FOD practice)!
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Deb Lee Gould
Jul 7, 20183 min
2018 FOD/OAA International Metabolic Conference
Bloomington, MN July 6-7, 2018 2018 Conference Sponsors ~ Our premier Sponsor/Host was Mayo Medical Labs as well as many other valuable...
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Deb Lee Gould
Jul 1, 20171 min
FOD Awareness Banners
Our 1st FOD Awareness Month was JULY 2012 and we were also highlighted on July 15, 2013 honoring Kristen and Kevin in the USA Today Life...
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Deb Lee Gould
Jun 1, 20171 min
New FOD Banner
As we attend Conferences and expos, our new FOD Banner will help create awareness and educate many about FODs and NBS ~ thank you to MCAD...
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Deb Lee Gould
Jul 9, 20162 min
2016 FOD/OAA International Metabolic Conference
Westminster, CO ~ July 8-9, 2016 ~ Our premier Sponsor/Host was The Metabolic Clinic at Children’s Hospital Colorado and University of...
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