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2018 FOD/OAA International Metabolic Conference

Updated: Dec 26, 2023


Bloomington, MN

July 6-7, 2018


2018 Conference Sponsors ~ Our premier Sponsor/Host was Mayo Medical Labs as well as many other valuable Sponsors.


Conference meetings were at the Embassy Suites by Hilton Minneapolis Airport.


FOD Conference Info and Speaker Presentations

For all who were not able to attend our Conference July 6-7, 2018 at the Embassy Suites Minneapolis Airport, we have posted the PowerPoint slides from our Speaker presentations, as well our Sponsors, Agenda and brief professional biographies.


2018FODOAAConferenceProgram
.pdf
Download PDF • 1.19MB

Conference Info

Our FOD/OAA International Metabolic Conference is for parents, family members, affected individuals, professionals and exhibitors that have an interest in Metabolic Disorders.


It is only through generous donations and sponsorships that the FOD Group and OAA are able to offer such an important opportunity every two years to Families and Professionals eager to learn more about our disorders.


If you are interested in helping our efforts as a donor or a FUTURE Conference Sponsor please refer to each Group’s website linked above or contact Kathy Stagni directly at mkstagni@gmail.com or call 763.559.1797!


Fatty Oxidation Disorders and Organic Acidemias are a group of rare metabolic disorders whereby fatty acids and protein, respectively, cannot be broken down in the body to be used as energy, especially in times of fasting or illness, and are treated through dietary changes and medications. When undiagnosed, severe medical complications and/or death can occur.


The importance of our Family Conference is to allow our members to meet other parents and professionals and learn more about their own or their child’s rare metabolic disorder. The focus for this conference is for Families to learn more about the medical management, nutrition and the social needs of caring for yourself or a child with a chronic disorder, specifically those with rare metabolic disorders. On Friday, we will have two separate sessions from 8-5pm – one for the FOD Group and one for the OAA Group and there will be a Friday Night Reception from 6-9pm for Families and Speakers. Saturday we will have a joint FOD/OAA session from 8-2pm, Group pictures taken with our FOD and OAA Tshirts, and a Professional Panel Question & Answer time. We will end with a beautiful Ending Ceremony Video!


The conference is a wonderful opportunity for Families to meet each other and have the opportunity to speak with professionals on an informal level. Children are encouraged to attend the Friday night Reception and we offer a variety of snacks and drinks during the Reception.


 

Our 2018 FOD Speakers


Mayo Clinic


Presentation: Keynote Address ~ What have I been doing since 2002? Milestones of a personal journey and memorable encounters along the metabolic path.


2018ConfDrRinaldoKeynote
.pdf
Download PDF • 2.89MB

 

Pediatric Neuropsychologist


Presentation to FOD Families: The psychology of metabolic conditions: The key to managing stress of FOD on parents and families


Presentation to FOD & OAA Families: Neuropsychology and Metabolic Conditions: The neurocognitive profile of FOD/OAA and the benefits of neuropsychological assessment


2018ConfDrBoysFODOA_npsy772018Jointtalk
.pptx
Download PPTX • 108KB

 

Speaker: Susan Berry, MD

University of Minnesota


Presentation to FOD Families: Jumping into your gene pool: Understanding genetic test results


2018ConfDrBerryjumpingintogenepool
.pptx
Download PPTX • 6.95MB

Presentation to FOD & OAA Families: What are the Limits of Newborn Screening?


2018ConfDrBerryNBSlimitsJointtalk
.pptx
Download PPTX • 27.16MB

 

Children’s Hospital of Pittsburgh


Presentation: New Therapies for Fatty acid Oxidation Disorders


2018ConfDrVockleyFamilyFAODSeminarUpdated
.pptx
Download PPTX • 34.08MB

 

Central Pennsylvania Clinic


Speaker: Charles Hehmeyer, Attorney

Raynes Lawn Hehmeyer


Presentation: Emergency Protocols and Q&A session


2018ConfDrMortonandChuckHehmeyer2
.pptx
Download PPTX • 8.42MB

 

Arkansas Children’s Hospital


Presentation: Use of Carnitine/Variability of FOD Presentations


2018DrKahlerCarnitineandVariabilityFODOAA2018
.pptx
Download PPTX • 4.75MB

 

Oregon Health & Science University


Presentation: Nutrition Guideline Development Process: VLCAD


2018ConfGillinghamFODsupportslides
.pptx
Download PPTX • 1.92MB

 

Speaker: Jennifer Cleary/Lena Eskin

NIH Caregiving Study


Presentation: The Caregiving Study at the National Institutes of Health: Exploring the relationship between stress, coping, and social support in families caring for children diagnosed with inherited metabolic conditions


2018ConfCaregivingStudyOAA_FOD_Presentation
.pptx
Download PPTX • 2.84MB

 

Speaker: Mark Korson, MD

VMP Genetics, LLC

Presentation: I teach. You teach better


2018DrKorsonFODOAATeachingJuly2018.participant
.pdf
Download PDF • 6.67MB

 

If you are interested in helping us plan 2-3 Regional Meet-Ups per year (instead of a Conference every 2 yrs) please contact Deb ~ we can only have the meetings IF we get some help from our members!

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