- MedicAlert [has overseas links, keeps protocol on file]
- Med IDs
- Medical ID Jewelry
- Air Transportation/Lodging links for Families in need
- National Patient Travel Center [800-296-1217]
- Traveling with Medications
- USA Hospitals
- List of international Children’s Hospitals
- Genetic Links Metabolic Clinics, Genetic Counselors, etc
- Medline Plus Drug Information
- Needy Meds
- Aspirin & Salicylate-Containing Meds to Avoid
- Diseases and Conditions Resource Directory
- When Cells face an Energy Crisis
- Maternal and Child Health Library
- Special Needs Equipment
- G-tube Care: Tips and Tricks
- Complex Child E-magazine articles
- Guide to helping children and families coping with illness
- My Special Needs Network
- Cerebral Palsy Guide
- Speechville Express
- Parents Helping Parents
- Parent 2 Parent-USA [special needs info]
- Family Voices – children with special health care needs
- Medical Home Portal – Resources for special needs and chronic conditions
- National Newborn Screening & Genetics Newborn Center
- National Healthy Mothers, Healthy Babies Coalition
- Regions 1-7 Newborn Screening and Genetics Collaboratives – Family and Professional Resources in the US
- Sudden Infant Death Syndrome (SIDS)
- Sudden Unexplained Death in Childhood Program
- Children’s Cardiomyopathy Foundation
- Exceptional Parent Magazine
- The Father’s Network
- Genetic Alliance
- Kennedy Krieger Institute [Feeding Clinic]
- Make A Wish Foundation
- Adam’s LCHAD Home Page
- National Center for Biotechnology Information
- Angelman’s Syndrome
- Legal and Advocacy Resources
- Patient Advocate Foundation
- Wrightslaw – Parent Advocacy: What you should do…and not do
- Munchausen Syndrome and Medical Child Abuse