- FOD & NBS Awareness Info sheet (PDF) [9 slides per page] and as Slideshow (PDF)
- Baby’s First Step ~ What does your state screen for?
- National Newborn Screening & Global Resource Center
- National Coordinating Center for the Regional Genetic Service Collaboratives
- Genetic Alliance’s NBS Channel of Videos
- NBS and Genetics Collaboratives across the US
- FOD Director Advocates Expanding NBS
- FOD Group’s Stand on Expanded NBS
- Importance of Expanded Newborn Screening!
- The Case for Universal Newborn Screening – Editorial Commentary by Charles P. Hehmeyer (PDF)
- Litigation and the child with a Metabolic Disorder. Charles P. Hehmeyer (PDF)
- Expanded Newborn Screening 2005-2009, Potential Legal Claims (PDF) by Chuck Hehmeyer, practicing attorney
- Why Emergency Protocols are NEEDED and why they NEED to be followed by Chuck Hehmeyer, practicing attorney
- Long-Term follow-up of Infants Identified by Tandem Mass Spectrometry (PDF)
- Cost Benefit Analysis Survey (PDF)
- FOD Director writes open letter for WHY expanded NBS is so VITAL! (PDF)
- FOD Newsletter Editorial directed at critics of Expanded NBS (PDF)
- FOD Family Support Group Brochure (PDF) updated 1.1.19
- NSW Australia NBS Program
- Expanded NBS in the UK
- India ~ Metabolic Errors and Rare Diseases Organization of India (parent support group)