In this section we will offer various interactive forms for such purposes as letter-writing campaigns, online registrations and surveys. We will notify you through our 1100+ member google Email List and 850+ member facebook Group as forms are posted.

If you would like to view past FOD newsletters in PDF (requires Acrobat Reader), please visit our archived newsletters section.

Please Note: The FOD Group has a PO Box ADDRESS (contact info), as well as a Michigan PHONE Number so disregard the NC address on past newsletters and online forms.

Thumbnail of the FOD Family Support Group brochure

FOD Brochure

FOD Family Support Group Brochure (PDF) [updated 2023]
Prints doublesided, 14 x 8.5 legal paper, borderless

FOD Family Questionnaire

We are in the process of updating our Family List – originally we had a printed List but because of copying/postage costs we discontinued that. Hopefully in the near future we will have a password protected Online Family List ONLY for FOD Families. Each member can update whatever information they would like to share. This new Family Questionnaire will also include questions that will assist us in gathering data that will help us write grants for funding. All of that information will be anonymous so no names etc will be divulged. We will let everyone know when our Online Family List is active. Until then please continue to use the Join our Group link so we can continue to network with new Families – and I (Deb) try to call/skype all new members no matter where you are in the world, so please be sure and list your phone number.

Professional Questionnaire for FOD Referral Purposes

Please complete this Questionnaire if you would like Families to know that you diagnose, clinically treat and/or do research with Fatty Oxidation Disorder Children and/or Adults. Please mail or fax this FOD Professional Questionnaire.

Release of Information Form

If you have a story, article, picture etc., to share, please download and fill out this form to submit with your contribution: Permission release form (PDF)