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All In This Together
Stacey Webber’s new book, Crazier Things Have Happened, is her journey to motherhood through the world of infertility and other life challenges. She is donating $1 of every book sold to the FOD (Fatty Oxidation Disorders) Family Support Group, as
Check out our new welcome kit! Great info for our new family members as well as any member who has been here for a while. Download the file.
Professionals ~ Please share your Expertise and your Research/Clinical work on our website! Professional articles or summaries on your clinical work or research [Drs, RNs, nutritionists, genetic counselors, social workers etc]. Contact Deb.
Donations are tax-deductible – we also now accept stock donations! Make a donation or contact Deb for stock donation info.
Visit our Awareness Items page to purchase FOD bracelets, FOD ribbon car magnets/stickers/window clings, tshirts, Lapel Pin and more ~ and our Donate page to find other ways to help raise funds for the FOD Group! All tax-deductible!
UPDATE! FOD Study Recruitment: Patients & Families needed for BOTH Studies – refer to below and our past Newsletters. 2023 MCAD Study (medication Triheptanoin) ~ Children’s Hospital of Pittsburgh of UPMC Division of Genetic and Genomic Medicine is looking for patients
Learn about FODs and how our Group began via our Videos . If you have an FOD Story in video format and would like me to post on our FOD youtube channel, contact Deb.
Volunteers Needed: Newsletter Formatting, Family Fundraisers, Regional FOD Meet-Ups, Grant Writing ~ Contact Deb
One of our FOD family members, Rosemary Forrest, has co-written an exciting new book, Genetic Mistakes: Understanding and Living with Fatty Acid Oxidation Disorders! She wrote this book “because I am one of you, a family member whose wonderful little grandson has
Excellent article honoring Dr Charles R Roe, one of our FOD research/clinical experts (retired from clinical FOD practice)!