Crazier Things Have Happened: Stacy Webber’s new book supports our FOD Group
UPDATE: Our FOD Family MeetUp was June 24, 2023 in Bethesda, MD!
New Welcome Kit
2020 FOD Regional MeetUp ~ Oct 24th in Hartford, CT ~ Virtual and Interactive!
Professionals Needed
Professionals ~ Please share your Expertise and your Research/Clinical work on our website! Professional articles or summaries on your clinical work or research [Drs, RNs, nutritionists, genetic counselors, social workers etc]. Contact Deb.
Donations are Tax-Deductible
Donations are tax-deductible – we also now accept stock donations! Make a donation or contact Deb for stock donation info.
Awareness Items
Visit our Awareness Items page to purchase FOD bracelets, FOD ribbon car magnets/stickers/window clings, tshirts, Lapel Pin and more ~ and our Donate page to find other ways to help raise funds for the FOD Group! All tax-deductible!
FOD Study Recruitment Update
UPDATE! FOD Study Recruitment: Patients & Families needed – refer to below and our past Newsletters. 2023 MCAD Study ~ Children’s Hospital of Pittsburgh of UPMC Division of Genetic and Genomic Medicine is looking for patients 16 years of age or
Learn About FODs with Videos
Learn about FODs and how our Group began via our Videos . If you have an FOD Story in video format and would like me to post on our FOD youtube channel, contact Deb.