Volunteers Needed: Newsletter Formatting, Family Fundraisers, Regional FOD Meet-Ups, Grant Writing ~ Contact Deb
Genetic Mistakes: Understanding and Living with Fatty Acid Oxidation Disorders
One of our FOD family members, Rosemary Forrest, has co-written an exciting new book, Genetic Mistakes: Understanding and Living with Fatty Acid Oxidation Disorders! She wrote this book “because I am one of you, a family member whose wonderful little grandson has
Article Honors Dr. Roe
Excellent article honoring Dr Charles R Roe, one of our FOD research/clinical experts (retired from clinical FOD practice)!
Probono Grief Support
Deb offers probono Grief Support for Bereaved Parents & other adults living with loss in person (Okemos, MI) or online via zoom video (only for US).
Physician Support Services
NEW Services! Physician Support Services ~ “metabolic diagnosis and management through the use of simple & secure technology. Scheduled and/or immediate access with 24/7 back-up for emergency cases are provided, and customized to the needs of the client or clinical program. This kind of
Partnership with Rare Patient Voice
We have created a partnership with Rare Patient Voice, LLC, that offers our Family members a chance to have their voices heard via “surveys and interviews to improve medical products and services.” Here is the FOD link. And it also is a
2018 FOD/OAA International Metabolic Conference
Bloomington, MNJuly 6-7, 2018 2018 Conference Sponsors ~ Our premier Sponsor/Host was Mayo Medical Labs as well as many other valuable Sponsors. Conference meetings were at the Embassy Suites by Hiton Minneapolis Airport. FOD Conference Info and Speaker Presentations For all who were
FOD Awareness Banners
Our 1st FOD Awareness Month was JULY 2012 and we were also highlighted on July 15, 2013 honoring Kristen and Kevin in the USA Today Life Charity Spotlight section. For our 2017 Banner we honored Chelsea (1992-2016,LCHAD) and Josh (14 yrs, MADD/GA 2 from Australia). And for the
New FOD Banner
As we attend Conferences and expos, our new FOD Banner will help create awareness and educate many about FODs and NBS ~ thank you to MCAD dad, Keith Widmann for designing our banner!
2016 FOD/OAA International Metabolic Conference
Westminster, CO ~ July 8-9, 2016 2016 Conference Sponsors ~ Our premier Sponsor/Host was The Metabolic Clinic at Children’s Hospital Colorado and University of Colorado School of Medicine. Conference meetings were at the Westin Westminster. Speaker Agenda FOD Speaker Presentations For all who