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Fatty Oxidation Disorders Family Support Group

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Author: FODAdmin

Volunteers Needed

Volunteers Needed: Newsletter Formatting, Family Fundraisers, Regional FOD Meet-Ups, Grant Writing ~ Contact Deb

FODAdmin January 29, 2019January 29, 2019 What's New? No Comments Read more

Genetic Mistakes: Understanding and Living with Fatty Acid Oxidation Disorders

One of our FOD family members, Rosemary Forrest, has co-written an exciting new book, Genetic Mistakes: Understanding and Living with Fatty Acid Oxidation Disorders! She wrote this book “because I am one of you, a family member whose wonderful little grandson has

FODAdmin January 29, 2019January 10, 2022 What's New? No Comments Read more

Article Honors Dr. Roe

Excellent article honoring Dr Charles R Roe, one of our FOD research/clinical experts (retired from clinical FOD practice)!

FODAdmin January 29, 2019January 9, 2022 What's New? No Comments Read more

Probono Grief Support

Deb offers probono Grief Support for Bereaved Parents & other adults living with loss in person (Okemos, MI) or online via zoom video (only for US).

FODAdmin January 29, 2019January 29, 2019 What's New? No Comments Read more

Physician Support Services

NEW Services! Physician Support Services ~ “metabolic diagnosis and management through the use of simple & secure technology. Scheduled and/or immediate access with 24/7 back-up for emergency cases are provided, and customized to the needs of the client or clinical program. This kind of

FODAdmin January 29, 2019December 23, 2022 What's New? 2 Comments Read more

Partnership with Rare Patient Voice

We have created a partnership with Rare Patient Voice, LLC, that offers our Family members a chance to have their voices heard via “surveys and interviews to improve medical products and services.” Here is the FOD link. And it also is a

FODAdmin January 29, 2019January 29, 2019 What's New? No Comments Read more

2018 FOD/OAA International Metabolic Conference

2018 FOD/OAA International Metabolic Conference

Bloomington, MNJuly 6-7, 2018 2018 Conference Sponsors ~ Our premier Sponsor/Host was Mayo Medical Labs as well as many other valuable Sponsors. Conference meetings were at the Embassy Suites by Hiton Minneapolis Airport. FOD Conference Info and Speaker Presentations For all who were

FODAdmin July 7, 2018February 20, 2019 Conferences No Comments Read more

FOD Awareness Banners

Our 1st FOD Awareness Month was JULY 2012 and we were also highlighted on July 15, 2013 honoring Kristen and Kevin in the USA Today Life Charity Spotlight section. For our 2017 Banner we honored Chelsea (1992-2016,LCHAD) and Josh (14 yrs, MADD/GA 2 from Australia). And for the

FODAdmin July 1, 2017December 23, 2022 What's New? No Comments Read more

New FOD Banner

As we attend Conferences and expos, our new FOD Banner will help create awareness and educate many about FODs and NBS ~ thank you to MCAD dad, Keith Widmann for designing our banner!

FODAdmin June 1, 2017June 26, 2020 What's New? No Comments Read more

2016 FOD/OAA International Metabolic Conference

2016 FOD/OAA International Metabolic Conference

Westminster, CO ~ July 8-9, 2016 2016 Conference Sponsors ~ Our premier Sponsor/Host was The Metabolic Clinic at Children’s Hospital Colorado and University of Colorado School of Medicine. Conference meetings were at the Westin Westminster. Speaker Agenda FOD Speaker Presentations For all who

FODAdmin July 9, 2016January 10, 2022 Conferences No Comments Read more
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