Portland, Oregon
Our 2012 FOD/OAA National Metabolic Conference was held on July 20-21 in Portland, Oregon at the Red Lion Hotel on the River. Our Premier Sponsor was Oregon Health & Science University Department of Medical and Molecular Genetics. We had over 200 FOD and OAA Families and Professionals interested in Fatty Oxidation Disorders and Organic Acidemias join us for a fantastic time in Portland!
FOD Speaker Presentations
For all of those who were unable to attend our conference this July 20-21 at the Red Lion Hotel on the River, we are posting the PowerPoint slides (converted to PDF for easier viewing) from our Speaker presentations, as well our Sponsors, Agenda and brief professional biographies.
Our turnout this year was our highest ever for the FOD Group (about 110 FOD, 75 OAA, @10 professionals) and we hope that our next conference in 2 years will have an even larger attendance! We will let you know if we are successful at finding a major sponsor to help us offer another great Conference. Your suggestions for location, speakers, and topics are always appreciated (email to deb@fodsupport.org).
I want to personally THANK Dr Melanie Gillingham for helping Kathy Stagni (OAA) and I coordinate this event and Oregon Health & Science University Dept of Medical and Molecular Genetics for being our Host/Sponsor and to all of our Sponsors and Supporters! Thank you also to ALL of our FOD Volunteers (Eileen, Gwen, Brenda, Terri, and several others!) and the student Volunteers that helped in the Children’s Activity Room ~ you did a terrific job! THANK you to all of our Speakersfor sharing their expertise and knowledge of FODs and related medical, psychological, nutritional, family, educational, and newborn screening issues. Families came away from this conference with ALOT to think about, as well as having the opportunity to connect with other families around the world dealing with many similar issues. They also had many opportunities to speak with our Professionals and ask them a variety of questions. This year, because of a very generous anonymous donation from back in 2010, we were able to offer scholarships that assisted 7 Families with registration, travel, and hotel costs ~ two of those Families included an MCAD Dad from Greece and one adult LCHAD and his dad from Australia!
Assistant Professor
Molecular & Medical Genetics/
Dietetics & Nutrition
Oregon Health & Science University
Portland, OR
Presentation: ‘Energy Balance: The tight rope between too little and too much’
with many similar issues. They also had many opportunities to speak with our Professionals and ask them a variety of questions. This year, because of a very generous anonymous donation from back in 2010, we were able to offer scholarships that assisted 7 Families with registration, travel, and hotel costs ~ two of those Families included an MCAD Dad from Greece and one adult LCHAD and his dad from Australia!
Some of the Speaker Presentations/Audios are large so give them time to load completely.
Our 2012 FOD Speakers and Joint FOD/OAA Speakers
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Melanie Gillingham, PhD, RD
Assistant Professor
Molecular & Medical Genetics/
Dietetics & Nutrition
Oregon Health & Science University
Portland, OR
Presentation: ‘Energy Balance: The tight rope between too little and too much’
[Takes awhile to upload audiotape so be patient!]
Mark Korson, MD
Chief, Metabolism Service
Tufts Medical Center
Boston, MA
Presentation: ‘Anatomy of a Metabolic Crisis: FAOD-style’
Dr Vockley FOD Audiotape
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Jerry Vockley, MD, PhD
Chief of Medical Genetics
Division of Medical Genetics
Children’s Hospital of Pittsburgh of UPMC
Pittsburgh, PA
Presentation: ‘Emerging Treatments for long chain fatty acid oxidation defects and glutaric acidemia type 2’
Cary Harding, MD
Associate Professor
Molecular & Medical Genetics/Pediatrics
Oregon Health & Science University
Portland, OR
Presentation: ‘Exercise and rhabdomyolysis in long chain fatty acid oxidation disorders’
[Takes awhile to upload audiotape so be patient!]
David Koeller, MD
Director, Metabolism Clinic
Chief, Division of Metabolism in Department of Pediatrics
Oregon Health & Science University
Portland, OR
Presentation: ‘Mitochondrial Energy Metabolism: How Fatty Acids and Other Fuels Keep our Bodies Running’
[Takes awhile to upload audiotape so be patient!]
Nancy Sinden, MS, CCC-SLOP
Pediatric Feeding & Swallowing Disorders Clinic
Child Development and Rehab Center
Oregon Health & Science University
Portland, OR
Presentation: ‘Feeding the Whole Child: A Nourishing Mealtime Experience’
Mark Korson, MD
Chief, Metabolism Service
Tufts Medical Center
Boston, MA
Presentation: ‘Improving Metabolic Care Through Education’
Kathleen Huntington, RD, LD
Metabolic Clinic at Child Development & Rehab Center
Oregon Health & Science University
Portland, OR
Presentation: ‘Update on Metabolic Formula Legislation’
[Takes awhile to upload
audiotape so be patient!]
Stephan Kahler, MD
Professor, Genetics and Metabolism Section
Dept of Pediatrics
University of Arkansas for Medical services
Little Rock, AR
Presentation: ‘Ignorance, Uncertainties, and Controversies Or What have we learned in 50 years?’
[Takes awhile to upload
audiotape so be patient!]
Danny Duke, PhD
Assistant Professor, Pediatrics and Psychiatry
Child Development and Rehab Center
Oregon Health & Science University
Portland, OR
Presentation: ‘Three Key Parenting Strategies to Optimize Adjustment, Coping, and Adherence to Treatment Recommendations’
Karen Brown, MEd
Child Development and Rehab
Oregon Center for Children & Youth with SpecialNeeds
Oregon Health & Science University
Portland, OR
Presentation: ‘Educational Rights & Strategies for Children & Youth with Special Health & Developmental Needs’
- . (opens in a new tab)” href=”/july202012ProPanelQandAcopy.MP3″ target=”_blank”>Professional Panel Friday, July 20, 2012
- . (opens in a new tab)”>Professional Panel Saturday, July 21, 2012
Hope to see you again in 2014!