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Newborn Screening Links & Resources

• FOD & NBS Awareness Info sheet (PDF) [9 slides per page] and as Slideshow (PDF)
• What does your state screen for?
• Baby's First Step
• NBS Clearinghouse
• Search for Regional Genetic Services and NBS Collaboratives
• Genetic Alliance's NBS Channel of Videos
• Labs that offer additional Newborn screen tests
• NBS and Genetics Collaboratives across the US
• FOD Director Advocates Expanding NBS
• FOD Group's Stand on Expanded NBS
• Importance of Expanded Newborn Screening!
• The Case for Universal Newborn Screening - Editorial Commentary by Charles P. Hehmeyer (PDF)
• Litigation and the child with a Metabolic Disorder. Charles P. Hehmeyer (PDF)
• Expanded Newborn Screening 2005-2009, Potential Legal Claims (PDF) by Chuck Hehmeyer, practicing attorney
• Why Emergency Protocols are NEEDED and why they NEED to be followed by Chuck Hehmeyer, practicing attorney
• Long-Term follow-up of Infants Identified by Tandem Mass Spectrometry (PDF) Newborn Screening ResourcesCost Benefit Analysis Survey (PDF)
• FOD Director writes open letter for WHY expanded NBS is so VITAL! (PDF)
• FOD Newsletter Editorial directed at critics of Expanded NBS (PDF)
• FOD Family Support Group Brochure (PDF) updated 1.1.12
• NSW Australia NBS Program