FOD Email List 'Etiquette Rules'

••• Note: Please be aware that we are a very focused List SPECIFIC to FODs (as a primary or secondary diagnosis) and not a broad-based List dealing with various other mitochondrial disorders. There are several other Lists and Message Boards available on the internet that are not as focused as this List and are open to the public. Our private List is open to FOD Families (and family members) and professionals working with FOD Families.

••• Our List is for emotional and practical support for FODs only.

••• Additionally, messages are sent worldwide to over 400 members. We have a very diverse group of members as far as ethnic background, religious beliefs, political beliefs, etc ~ and that is to be respected. However,this List is for FOD related issues ONLY and is not a faith-based public religious or political forum. There are other internet Lists for such a purpose. Please keep that in mind when posting your FOD concern or question ~ use discretion and consideration.

••• Be sure to check your server's Mail Options so you may receive Email List messages so they are not automatically sent to your 'junk mail' folder. We have recently had problems with verizon and comcast bouncing our messages thinkng they are spam. You may want to consider signing up with a hotmail or yahoo address instead.

••• ALERT: If it comes to my attention that anyone other than an FOD Family/member/friend or FOD-related Professional has signed on for our List for marketing, etc reasons, they will be removed immediately.

••• We hope that you will find this to be a helpful resource in communicating with other FOD members. Please also note that the Email List Sign up is DIFFERENT than Registering for the Group (on the 'Contact Us' page on our site).

••• Disclaimer and 'Requests for List Content and Behavior':
This list is a link to other families (some medical and health-related professionals are also on this List) dealing with a Fatty Oxidation Disorder (FOD). It is to be used to convey emotional support and practical information, to ask questions, and/or to share experiences ~ in a MATURE and RESPONSIBLE manner (please avoid naming names and name-calling, especially when criticizing a person/place/situation you may have had difficulty with).

••• Please be aware that the Disclaimer on our website applies to our Email List as well, so please make sure to read that immediately. Even though families may share their child's/their own medical or nutritional situation/treatment, IN NO WAY does any member of the FOD Family Support Group or anyone on this List endorse other families making changes in their child's/their own treatment based on what is written/read on this List or on the website! That is to be decided between their Dr and specialists and themselves. So please remember if you choose to share that information make it a point to also write out a statement that you are not endorsing any changes in anyone's treatment. Changes should ONLY be made after discussing the situation/concerns with your own Drs and/or FOD specialists.

••• Also, please do not use this List for the propagation of 'unsolicited' email, including jokes, advertisements, recalls, or other forms of 'junk' email or FORWARDED messages from individuals or other Email Lists. If you find something interesting from another site please copy and paste the info (get permission if necessary) but do NOT forward any messages, even private emails sent from another List member to you ~ they are not to be posted on the entire List unless you have received permission from that other person. Violations of this request may cause your removal from this list. Thank you in advance for your attention to these requests.

Again, thank you for subscribing to the FOD Email List. We hope that you will find this to be a valuable source of support while dealing with your child's/childrens' FOD or your own FOD.

Take care...
Deb Lee Gould, MEd
Director, FOD Family Support Group
deb@fodsupport.org

Email: Webmaster