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In this section we will offer
various interactive forms for such purposes as letter-writing campaigns,
online registrations and surveys. We will notify you through our
email list as forms are posted.
If you would
like to view past FOD newsletters in PDF (requires Acrobat Reader),
please visit our archived newsletters
section.
Please
Note: The FOD Group has a NEW ADDRESS
(click Contact Us on the right sidebar),
as well as a NEW PHONE and Fax so disregard
the address on past newsletters and online forms.
On the right sidebar and below you can download the FOD
Family Support Group brochure in PDF format, as well as other forms
or articles on this site, for viewing or printing.
Please Note for Downloading and Saving PDF Files: If you
already have Adobe Acrobat Reader (download FREE on this page),
double click the name of the PDF* file in order to open it and read
online. However, if you double click and a blank screen comes up,
please click on your browser's refresh button. If it is still blank,
try saving the PDF* to your computer to view offline by RIGHT clicking
on the document name and save it to your desktop/computer by choosing
'Save Target As' and following the directions.
FOD
Family Questionnaire
We are in the process of updating our Family List - originally we had a printed List but because of copying/postage costs we discontinued that. Hopefully in 2010 we will have a password protected Online Family List ONLY for FOD Families. Each member can update whatever information they would like to share. We are also updating our Group Registration Form to include questions that will assist us in gathering data that will help us write grants for funding. All of that information will be anonymous so no names etc will be divulged. We will let everyone know when our Online Family List is active. Until then please continue to use the Group Registration link so we can continue to network with new Families - and I (Deb) try to call all new members no matter where they are in the world, so please be sure and list your phone number.
Family Project for FOD Awareness Agreement Form
Professional
Questionnaire for FOD Referral Purposes
Please complete this Questionnaire if you would like Families
to know that you diagnose, clinically treat and/or do research with
Fatty Oxidation Disorder Children and/or Adults. Please print
this questionnaire in PDF and mail or fax to the NEW address listed
on our contact page.
Release
of Information Form
If you have a story, article, picture etc., to share, please download and fill out this
form to submit with your contribution: Permission
release form (PDF*)
FOD
Penpal Program Form
Would your child be interested in making a new friend and getting
to know another child like him/herself with an FOD? Why not sign up for our Main google Email List (FOD Families Only - adults and teens at least 16 yrs old - signup on our Home page) to find other Families that might be interested in having their kids be Pen Pals. What a great way for them to share how
they feel about their FOD. If your child might be interested please sign yourself up for our 800+ member Email List and post that you'd like to find other Families interested in connecting their children!
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