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Evan
Hammer is a 22-month-old happy, energetic, adventurous, curious
and (knock on wood) healthy toddler who happens to have SCAD.
It's been a long haul for us but I think he is at a place in
life where I can pretty comfortably say that Evan will live a
healthy and normal life. And still, the worry never fully fades
away, the fear of "what if" still resonates inside of me and the
everlasting hope that Evan is the luckiest little boy on earth
stays close to my heart.
Over the past six months, when Evan's story was initially posted
in this newsletter, Evan has made wonderful developmental
strides. The surgery to put tubes in his ears was a
success and within days Evan became a walker. In fact, he did
not walk, he ran. Speech and his ability to focus have not been
as forthcoming and Evan currently receives Early Intervention
services with a special educator and speech therapist three hours
per week. While his speech is not yet developed, he shows signs
of progress as he mimics sounds, makes gestures and says a few
words. His ability to focus has extended itself beyond his obsessive
love for The Wiggles and he now enjoys reading books, playing
with toys, being on a swing set, socializing with his peers and
cuddling with his family members.
As Evan approaches the age of two, I see signs of "the terrible
two's." Just like other kids, Evan has tantrums and insists on
having everything his way. On one hand, I don't want to spoil
him by giving in to everything he wants and on the other hand,
I am ecstatic to see that Evan is exhibiting "normal" and "age
appropriate" behaviors. Disciplining, trying to help
him grow up into a well adjusted individual and making sure that
Evan's medical needs are always tended to, continue to be my
focus. However, the focus has shifted and I am finally
at a point where Evan is not often granted special treatment
because of his SCAD. Rather, he is usually treated as
an equal to his three and a half year old sister, Alexis.
It has been a long 22 months - 22 months filled with sleepless
nights, worry, fear, searches for answers and explanations about
SCAD, etc. Happily, life is settling down and things are gradually
falling into place. As Evan approaches his second birthday in
February, we are already planning his summer at camp as well
as preschool classes in the fall. Most importantly, we
are feeling confident that the days and years in
front of Evan will be filled with endless health, love and happiness. We
wish you all the same in 2006!
Lauren Hammer
Westfield, New Jersey
December 21, 2005
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