©1991-2008 Deb Lee Gould and FODSupport.org

All rights reserved. All text, logos, graphics, designs and other content on this site, are the property of Deb Lee Gould and FODSupport.org. Permission to use, copy and distribute information on this site, in whole or in part, for non-commercial use and without fee, is hereby granted, provided that this copyright, permission notice and appropriate credit to The FOD Communication Network be included in all copies. There is one exception to the above ~ please refer to the 'Permission to Reprint' conditions for the Coping and Healing article on Deb's Personal Perspective on Parental Grief and 'Healing'

The opinions and information provided here are not necessarily those of the author or anyone associated with the FOD Family Support Group, and are presented for informational and educational purposes only. The author or the FOD Family Support Group, accepts no responsibility for content, accuracy or use.

The reader of any information on this website, as well as on the FOD Email List or from private emails/phone conversations/consults with Deb (FOD Director), is responsible for how he/she perceives and utilizes it.

E-mails from Deb (or Mary, our webmaster) and any attachments are intended for the sole use of the addressee listed. It may contain confidential or proprietary information. The recipient is obligated to maintain it in a safe, secure and confidential manner.  Unauthorized redisclosure or failure to maintain confidentiality may subject you to federal and state penalties. If you are not the intended recipient, please immediately notify me (Deb) by return email, and delete the message from your computer. If you are not the intended recipient, please be aware that any review, use, dissemination, distribution, downloading, or copying of this communication, in whole or in part, is strictly prohibited and may be unlawful. Please note that e-mails are susceptible to change after transmission.

The FOD Family Support Group or any of its volunteers will not be held liable for how this information is perceived or utilized. Readers should consult with medical or legal professionals for advice on specific issues.

Please also be aware that if you translate any or all of this website into another language using the translator program on our site, that the content's meaning may be distorted or changed ~ so be sure to have a physician read over the material and/or consult with someone (i.e. possibly one of our contacts on the Diagnostic Lab listing) to clarify the content. Please also note that organization/support group links posted on our site are for informational purposes as well ~ they are not a blanket endorsement by the FOD Family Support Group of that organization.

Regarding Advocacy issues ~ our members' support for these issues is on an individual basis and is not an endorsement of organizations (or their policies/actions) that are linked on our site. If you, as an FOD member, choose to help with various groups advocating expanding NBS, formula legislation, and other related issues, please remember that you are acting as an individual and not as the designated spokesperson or representative for the FOD Family Support Group.

Please also note that if you (FOD Family) choose to do an FOD Awareness project on your own for the benefit of the FOD Family Support Group, the FOD Family Support Group will not have any financial or legal etc responsibilities for any outside event. By signing the 'Family Project for FOD Awareness Agreement Form' (which is on the 'Online Forms' page), you understand that you are fully responsible for your own awareness project and that only you will receive the tax-deduction if you send your US check made out to the 'FOD Family Support Group' to Deb's address.

The FOD Family Support Group is an all volunteer Family-based Support Group and as of Jan 1, 2007 we are officially a 501c3 Non-Profit corporation. All US donations are tax-deductible!

Our Federal Tax ID # is 83-0471342.

Thank you to all that have helped us over the years (gifts were not tax deductible prior to Jan 1, 2007 when we finally became a tax-exempt 501c3 nonprofit) so that we may continue to provide our support and information to Families and interested professionals free of charge. Your generosity helps to cover copying and postage costs, webpage fees, phone calls to new FOD Families (US and abroad), and Conference costs, as well as raising funds to train new FOD Clinical professionals and for FOD Research ~ we have no paid staff so funds are not used for administrative salaries. THANK YOU from ALL of us!

Please Note: We do NOT email ANY mass solicitations for support so if you receive an email that looks like it came from me (Deb),

do NOT respond!

NEVER make any changes to your child's (or your own) treatment without first consulting with his/her/your doctor(s). DO NOT make any changes in treatment (medical, nutritional, behavioral, etc) based solely on what is read on this site, in the FOD Email List Archives, or discussed via phone/email conversations with other FOD Families, or with Deb. Always consult with your child's/your Drs and specialists BEFORE any changes are considered.